The Fragile X Association of Victoria is a volunteer group of parents and friends of people affected with Fragile X syndrome.

The aim of the group is to provide information and support to those people whose lives have been affected by Fragile X. Our services include the organising of family events, seminars, newsletter, a peer counselling service, webpage, addressing issues and concerns put to the committee by Fragile X families and to promote research, education and public awareness of the syndrome by fundraising, media coverage and other activities.

Download our latest newsletter here

View the latest committee meeting minutes here

Committee Profile

President: Sharon Davey

Vice-President: Maggie Bartle

Secretary: Alison Dreckman

Treasurer: Andrew Bartle

General Committee Members: